Conditions and Diseases: Chronic Illness: Pediatric
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Conditions and Diseases
Parental Advise on Coping with Chronic Illness of your Child
http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htm
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
Starbright Foundation for Seriously Ill Children
Empowerment Programs and chatrooms, videos, comic books and cd-roms. Topics: school re-entry, coping with hospital life, radiation therapy; reintegration after burn injury.
Teenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers.
Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
Chronic Illness: New and Old Ideas to Care for Children
Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project.
Adolescents Psychological Complications of Chronic Illness
Information from The Child Health Library of Children's Hospital of Pittsburgh.
What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves.
Pain and Chronic Illness in Children
Short paper on the importance of pain management.
Care Coordination Guidelines for Children
Florida Department of Health Childrens Medical Services Network describes family centered care, integration of care coordination. Includes assessment steps, tips and ideas and forms.
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
Coping in Parents of Chronically Ill Children
Assessment and Intervention Strategies article in Pediatric Nursing describes parent stressors, coping assessment tools, nursing assessment tools and a framework for intervention.
Complete article (also as PDF) on longterm needs, financial and medical planning.
Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
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