Conditions and Diseases: Genetic Disorders: Batten
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LINKS:
Batten Disease Family Association
http://www.bdfauk.freeserve.co.uk/
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
Batten Disease Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Batten Disease Support and Research Association
http://www.bdsra.org/
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Nathan's Battle
http://www.nathansbattle.com
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
The Luke and Rachel Batten Foundation
http://lrbf.org
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
The Natey Foundation
http://www.nateyfoundation.org/
Information for parents and families of Battens victims.
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