Conditions and Diseases: Genetic Disorders: Batten
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Conditions and Diseases
The Natey Foundation
Information for parents and families of Battens victims.
Batten Disease Information Page
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Batten Disease Family Association
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
The Luke and Rachel Batten Foundation
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
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