Conditions and Diseases: Genetic Disorders: Beckwith-Wiedemann Syndrome
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: Beckwith-Wiedemann Syndrome
LINKS:
Adam.com: An Overview
http://www.nlm.nih.gov/medlineplus/ency/article/001186.htm
A definition of beckwith-wiedemann syndrome, along with a look at the alternate names, causes, incidence and risk factors.
Beckwith-Wiedemann and Related Disorders Victoria
http://www.geocities.com/bwsandsgbs/BARDVicindex.html
Information resource for families affected by the overgrowth disorders Beckwith-Wiedemann Syndrome, Simpson-Golabi-Behmel Syndrome or Isolated Hemihypertrophy.
Beckwith-Wiedemann Family Chat Forum
http://groups.yahoo.com/group/bwschat
An international email discussion group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support.
Beckwith-Wiedemann Family Forum
http://www.geocities.com/beckwith_wiedemann/
A way for people from around the world who are interested in BWS to get support and share information.
Beckwith-Wiedemann Support Group
http://www.ukindex.info/bwsg
UK based support group. Offers a database of information and puts parents in contact with others in their locality.
BWSN: Beckwith-Wiedemann Syndrome
http://beckwith-wiedemann.org/index.html
Information about this organization, created for parents, professionals, and others interested in this disease. An invitation to join an email support group.
Keep Kids Healthy
http://www.keepkidshealthy.com/welcome/conditions/beckwithwiedemann.html
A discussion of beckwith-wiedemann syndrome, its features and treatments.
National Library of Medicine
http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome052.html
weckwith-wiedemann syndrome, a list of synonyms, a summary and a major features.
The CaF Directory
http://www.cafamily.org.uk/Direct/b12.html
A description of beckwith-wiedemann syndrome, features, and possible complications. Also information about a support group.
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