Conditions and Diseases: Genetic Disorders: Ectodermal Dysplasia

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LINKS:

Ectodermal Dysplasia Society
http://www.ectodermaldysplasia.org/
Information about the organization as well as the ED condition. Includes links, news articles and contact details.

National Foundation for Ectodermal Dysplasia
http://www.nfed.org/
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.

NORD: Ectodermal Dysplasias
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
Offers synonyms, a general discussion and resources.

The Andy Fund
http://www.andy.org.mx
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.

The CaF Directory
http://www.cafamily.org.uk/Direct/e14.html
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.

The Ectodermal Dysplasia Mailing List
http://hometown.aol.com/charliein/ed/home.html
Includes instructions on joining the list, FAQs and links to further resources.

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