Conditions and Diseases: Genetic Disorders: Personal Pages

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Alpha1 Antitrypsine Deficiency
http://home.att.net/~a1ad/intro.htm
One man's perspective and journey with A1AD and a list of links and other resources from the internet.

Ashly's Skeletal Dysplasia
http://www.angelfire.com/or2/ashlysworldofwonders/about.html
A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.

Caleb's Courage
http://www.geocities.com/calebwaddell
A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.

Joy's Page
http://www.lebaronfamily.com
Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.

Maddy's Page
http://members.aol.com/kymwig
The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.

MCAD Angel
http://www.mcadangel.com
Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.

Mowat-Wilson
http://www.mowatwilson.org
Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.

Robert Kenneth Picklesimer
http://www.picklesimers.com/robert_kenneth.html
Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.

Story of Robert Purkis
http://swpurkis.pwp.blueyonder.co.uk/index.html
A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.

Taryn's World: About Switches
http://www.tarynsworld.org/taryn/switches.htm
Personal page for kids and parents about genetic disorders, especially mannosidosis.

Treacher Collins Syndrome - A Personal View
http://www.treachercollins.co.uk
UK based website, containing information about the disorder, with helpful links and discussion forum.

Unlucky Mutant
http://unluckymutant.no.sapo.pt
The author request help from geneticists, neuroscientists, pharmaceuticals or biotech companies.

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