Conditions and Diseases: Genetic Disorders: Sanfilippo Syndrome

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LINKS:

Ben's Dream
http://www.bensdream.org
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.

Bennett Children's Foundation
http://www.helpachild.net
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.

Children's Medical Research Foundation
http://www.curekirby.org
A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.

MPS III: Sanfilippo Syndrome
http://www.mpssociety.org/mps3.html
Information, including the causes, different forms, the inheritance and how the disorder progresses.

NORD: Sanfilippo Syndrome
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo%20Syndrome
Offers a list of synonyms, a general discussion and further resources.

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