Conditions and Diseases: Genetic Disorders: Shwachman Syndrome

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LINKS:

Katie's Journey
http://www.katiesjourney.50megs.com
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.

NORD: Shwachman Syndrome
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome
Offers a general discussion, the synonyms and further resources.

Shwachman Syndrome
http://www.chariot.net.au/~dna/angelica.html
A mothers story to diagnose this disorder before a team of doctors could.

Shwachman-Diamond America
http://shwachmandiamondamerica.org
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.

Shwachman-Diamond Syndrome Family/Friends
http://groups.yahoo.com/group/shwachmansyndrome/
An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.

Shwachman-Diamond Syndrome International
http://www.shwachman-diamond.org/
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.

The CaF Directory
http://www.cafamily.org.uk/Direct/s24.html
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.

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