Conditions and Diseases: Genetic Disorders: Shwachman Syndrome
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Conditions and Diseases
: Shwachman Syndrome
The CaF Directory
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
A mothers story to diagnose this disorder before a team of doctors could.
Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
Shwachman-Diamond Syndrome Family/Friends
An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
NORD: Shwachman Syndrome
Offers a general discussion, the synonyms and further resources.
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
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