Conditions and Diseases: Genetic Disorders: Xeroderma Pigmentosum

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LINKS:

Children of the Moon
http://www.moonchildren.com
A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.

National Organization of Rare Disorders - Xeroderma Pigmentosum
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum
Offers alternative names, a general discussion and resources.

Online Mendelian Inheritance in Man - Xeroderma Pigmentosum
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=278700
Includes summaries of genetic research results and citations.

Understanding Xeroderma Pigmentosum
http://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf
Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]

Xeroderma Pigmentosum
http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html
An article about this disorder in English and Italian along with some images.

Xeroderma Pigmentosum Society
http://www.xps.org
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.

XP Support Group
http://www.xpsupportgroup.org.uk
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.

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