Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome
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Conditions and Diseases
: Ehlers-Danlos Syndrome
Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
A Syrian patient gives a personal plea for better medical support and research.
Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
New York / New Jersey Ehlers-Danlos and Hypermobility
Offers a support, message and discussion center for NY/NJ ehlers-danlos patients.
Ehlers-Danlos Syndrome Information
A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
NORD: Ehlers-Danlos Syndrome
Information about EDS from the National Organization for Rare Disorders.
Ehlers-Danlos Syndrome, Philadelphia Chapter
Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
American Massage Therapy Association - The Hypermobile Client/Therapist
Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
The Hypermobility Syndrome Association
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.
The Canadian Ehlers-Danlos Association
Working together to provide assistance, support and resources for people living with this rare genetic disorder.
EDS Living - a Journal
Learn what it's like to live with EDS for this woman and her children by following her online journal.
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome
While EDS and Arthritis are two separate diseases, there are many characteristics in common. Additionally, EDS patients are at risk of developing OA. In addition to EDS information, site provides valuable pain and life management resources for patients.
Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
HealthWise: Ehlers Danlos Syndrome
Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
Hypermobility & Fibromyalgia Support Site
Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
Arthritis Insight-EDS Tips for Surgery
If you or a family member with EDS needs surgery, read this and share it with your doctor.
Coalition for Heritable Disorders of Connective Tissue
Research organization for genetic connective tissue disorders.
Department of Pathology
Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
Ehlers-Danlos Syndrome Linked to Orthostatic Intolerance
Explores connection between EDS and low blood pressure.
Ehlers-Danlos Syndrome Medical Information
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
Diagnose-Me: Treatments: Prolotherapy
Some EDS patients have obtained excellent results with prolotherapy treatments.
Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
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