Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Marfan Syndrome
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Conditions and Diseases
: Marfan Syndrome
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
Information about an e-mail mailing list. Also includes links to other online support groups.
Jeanette Navia's Marfan Life Website
Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
eCureMe.com -- Marfan's Syndrome
Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.
Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.
A Question-Answer format page of information.
Polish Marfan Association
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
Central Ohio Marfan Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharoah along with theories applied to what he may have had, including Marfan's.
Children's Heart Institute: What is Marfan Syndrome?
Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease.
Guide to Marfans Syndrome
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
Theresa E. Pageau - A Memorial Tribute
A tribute to a patient with this disease accompanied by information and links related to donating.
A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Comprehensive guide to this connective tissue disease.
Marfan Support and Information
Support group in New South Wales, Australia.
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