Conditions and Diseases: Neurological Disorders: Peripheral Nervous System: Neurofibromatosis
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Conditions and Diseases
Peripheral Nervous System
Support and information for those with Neurofibromatosis.
The National Neurofibromatosis Foundation (NNFF)
Comprehensive information sponsored by the National Neurofibromatosis Foundation for people with NF, and links to other sites.
Links, with reviews, to information about neurofibromatosis 1 (Von Recklinghausen's disease. Personal pages.
Neurofibromatosis(Von Recklinghausen's disease)
A review of the most important aspects on physical examination, classification and treatment, for medical students.
The Neurofibromatosis Association UK
Information about the UK Association, including family support, membership details and local group contacts.
Neurofibromatosis Resources - Photographs
Photos of cafe au lait spots and external neurofibroma tumors.
Neurofibromatosis Clinic at M. D. Anderson Cancer Center
Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
British Columbia Neurofibromatosis Foundation
BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
Neurofibromatosis Association of Australia Inc.
Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
Links to European neurofibromatosis laygroups.
On-line discussion group for people with neurofibromatosis 2.
Drug therapies for the treatment of two genetic disorders: neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2). Find overviews, clinical trials and news.
A gathering place for the NF community that includes: chat, support resources, and information.
Neurofibromatosis Clinics Association, Inc.
A non-profit organization for people with NF and their families.
Pillar Point NF Races
A NF Team dedicated to finding a cure and treatment for Neurofibromatosis (NF). Includes disease and race information.
Race for NF Research
Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.
This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.
Neurofibromatosis Clinics Association Volunteer Opportunities
Details of many ways to volunteer to help the Neurofibromatosis Clinics Association.
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