Conditions and Diseases: Neurological Disorders: Rett Syndrome: Personal Pages

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LINKS:

Debbie Schilling and Tom Bundy
http://www.bundlings.com/
Personal stories and various links for Rett Syndrome information.

Helping Girls with Rett Syndrome Improve Growth
http://www.ars.usda.gov/is/pr/1999/990223.htm
February 23, 1999. News from the USDA Agricultural Research Service.

Idaho Mountain Express
http://www.mtexpress.com/1998/10-14-98/rett.htm
Local mom hopes to educate others about Retts Syndrome.

Kim Johnson
http://home.vicnet.net.au/~dealccinc/Kim1.htm
The deterioration associated with Rett Syndrome has left her severely dyspraxic and without speech. Personal story.

Kimbo's Korner
http://www.rettangels.org/members/kimberly
Story of a young woman living with Rett Syndrome. Many pictures and links.

Living With Rett Syndrome
http://members.tripod.com/~conniecoughlin/livingwrs.html
Connie's story with information and links.

Rebekah's Rett Syndrome
http://www.angelfire.com/grrl/rebekahspage/index.htm
Personal story of Rebekah through 3 years of tests, diagnosis, and finally news of the gene being found.

Rett Syndrome
http://www3.nb.sympatico.ca/ipenner/rs.html
Irma Penner's book, The Right to Belong-The Story of Yvonne, describes the importance of community and school integration for children with severe disabilities.

Rett Syndrome Parent
http://www.webspawner.com/users/rettsyndromeparent/
Contact and help for parents of a child with Rett Syndrome.

Stacey Foster
http://www.staceyfoster.co.uk/
Young woman living with Rett Syndrome.

Touched by an Angel
http://geocities.com/melicamay
Introduction to Rett Syndrome and Angelman Syndrome, a personal view, photographs, and links.

WM House
http://www.wmhouse.com/
Information, stories, and contact networks.

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