Conditions and Diseases: Nutrition and Metabolism Disorders: Porphyrias
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Conditions and Diseases
Nutrition and Metabolism Disorders
Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list.
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
The American Porphyria Foundation
Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
King George II and Porphyria
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
Canadian Porphyria Foundation
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
Diagnosing the Porphyrias
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
A look at the different types of these disease and some of their characteristics.
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
Me and AIP
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
Prophyria in Charlottesville
An e-mail sent to Professor Huskey from a person working on a rescue squad.
Offers links and articles about Porphyria.
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
Porphyria: The Woman Who Has The Vampire Disease
Review on this book on porphyria written by Lenore B. Weinstein.
Information on porphyrias including the various types and its management.
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