Conditions and Diseases: Rare Disorders: Alström Syndrome
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: Alström Syndrome
LINKS:
Alström Syndrome
http://www.jax.org/alstrom
Clinical features, literature and research. Includes guidelines for health care professionals.
Alström Syndrome of Canada
http://alstromsyndrome.ca
Includes information about the condition, and the organisation.
Alström Syndrome UK Support Group
http://www.alstrom.org.uk/
Information centre and discussion forum for anyone with an interest in this disorder.
NORD - Alström Syndrome
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alstrom%20Syndrome
Sample report, plus links to organisations. [Fee required for full report]
Smart Groups: Alström Families
http://smartgroups.com/groups/alstromfamilies
Mailing list, pictures, links and files.
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