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Conditions and Diseases: Rare Disorders: Barth Syndrome: Barth Syndrome Foundation


  Home: Conditions and Diseases: Rare Disorders: Barth Syndrome:
Submitted: Sat Sep 06 2003
Title:

Conditions and Diseases: Rare Disorders: Barth Syndrome: Barth Syndrome Foundation


URL: http://www.barthsyndrome.org


Description: Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.



 


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