Health: Support Groups: Conditions and Diseases: Genetic Disorders

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8th International Symposium on Mucopolysaccharide and Related Diseases
http://www.mps-kongress2004.de
The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results.

Alliance of Genetic Support Groups
http://www.geneticalliance.org/
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

Blue Cone Monochromacy
http://www.yandle.com/bcm
A discussion board for those affected by BCM. Read the contents, search and post from this location.

Chromosome 18 Issues
http://pub6.ezboard.com/bchromosome18issues
A support and awareness discussion board for people affected by this disorder.

Chromosome 22 Central
http://www.nt.net/~a815/chr22.htm
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.

Chromosome Deletion Outreach, Inc. (CDO)
http://www.chromodisorder.org/
Non-profit voluntary support group for families affected by rare chromosome disorders.

Chromosome Help-Station
http://www.chromosomehelpstation.com/
Information on rare chromosomal disorders. Support and advice for families.

Cornelia de Lange Syndrome (CdLS) Foundation Outreach
http://www.cdlsusa.org
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

Distal Trisomy 10q Families
http://trisomy10q.darylanderson.com
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.

Forum for Patients with Myotonic Dystrophy 2
http://groups.yahoo.com/group/MyotonicDystrophy2
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.

Ideas
http://IDIC15.ORG
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).

Lafora body disease research talk
http://groups.msn.com/laforabodydiseaseresearchtalk
This is a discussion group about lafora body disease.

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