Health: Support Groups: Conditions and Diseases: Genetic Disorders: Page 2

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Online Genetic Syndrome Support Groups
http://members.aol.com/dnacutter/sgroup.htm
Sites are listed alphabetically by disease/condition.

Oto-Palatal-Digital Syndrome Family Resource Network
http://www.geocities.com/opdsyndrome
Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.

Parents of Polydactyly and Webbed Children
http://pub55.ezboard.com/bparentsofpolydactylychildren
A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others

Peter's Anomaly Support Group
http://www.petersanomaly.org/
An online support group for people dealing with Peter's Anomaly.

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities
http://groups.aol.com/_cqr/edsphilly3?mmch_=0
The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.

S.O.F.T.
http://www.soft.org.uk
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.

S.O.F.T.
http://www.trisomy.org/
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.

The Rainbow
http://pub10.ezboard.com/btherainbow
A forum for people who have chromosome abnormalites to show support, give advice and comfort.

Thomas Scott Davidson
http://www.geocities.com/thomasscottdavidson/index.html
This is a memorial website for Thomas Scott Davidson who died from Anencephaly.

Trisomy 18 Angel
http://www.trisomy18angel.com
This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.

Trisomy 18 Moms
http://www.T18moms.com
A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web.

Trisomy 18 Support Online Community
http://www.trisomy18support.org
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.

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