Health: Support Groups: Conditions and Diseases: Genetic Disorders: Page 3

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Unique Rare Chromosome Disorder Support Group
http://www.rarechromo.org/
Support and information for families of children with rare disorders.

Who is EPI ?
http://www.porphyria-europe.com
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.

X-Linked Alpha Thalassemia M/R Syndrome
http://health.groups.yahoo.com/group/atr-x
Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).

Yahoo Groups Floating Harbor
http://groups.yahoo.com/group/floating_harbor/
An active support site for the parents and families of children with Floating Harbor Syndrome.

Yahoo Support Group for CMT-HMSN-HNPP
http://health.groups.yahoo.com/group/CMT-Support/
A very active support group that prides itself on helping it's members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.

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