Health: Support Groups: Conditions and Diseases
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Burns
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Alexander Foundation
http://www.thealexanderfoundation.com/
Alexander Foundation is a non-profit charitable institution that supports the funding and research of Cloverleaf Syndrome.
Annie Angels
http://groups.msn.com/AnnieAngels/welcomepage.msnw
Support group for survivors and emotional survivors of the "silent killer" called Aneurysm. Offers love and support to abdominal and brain aneurysm survivors.
Association for Macular Diseases, Delaware Valley Chapter
http://www.dvamd.org
Macular Degeneration Support Group.
Autoimmune Disease Support Boards
http://www.AIsupportboard.com
Autoimmune disease Support Info, message boards, and chatroom.
Autoimmune Forum
http://www.autoimmuneforum.org
A place to share experiences and information, both for those suffering from an autoimmune disease and for their loved ones.
AVM Arteriovenous Malformation
http://aplasticcentral.com/avm
AVM Hemangeoma and Capillary Malformation support group hosted by the mother of a son with multiple AVM's.
B.C. Balance & Dizziness Disorders Society
http://www.balanceanddizziness.org
Information and support for persons with balance, dizziness, and all vestibular disorders. To develop awareness of the issues surrounding these disorders.
BEES (Bladder Exstrophy/Epispadias Support) UK
http://www.ukselfhelp.info/bees
Offers support by telephone and letter, raising awareness about the condition and giving advice and information on incontinence. Biannual Newsletter.
Brain Tumour Foundation (UK)
http://www.ukselfhelp.info/btf
The Brain Tumour Foundation (UK) provides support and information for those suffering from brain tumour.
Christians with Chronic Invisible Illnesses
http://members.shaw.ca/zonaszone/christian.html
Links to several Christian groups for people with invisible illnesses such as CFS, FM and MCS.
CIDP Organization of USA
http://www.cidpusa.org
A non profit support group for Chronic Inflammatory Demyelinating Polyradiculoneuropathy in USA.
Genetic Conditions Rare Conditions
http://www.kumc.edu/gec/support/
Lay advocacy and support groups, information on genetic conditions birth defects for professionals, educators, and individuals.
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